At last, an update...

Dear readers,

It has been a long time ago. The departure closing in everything has gone so fast that it has been hard for me to keep up... But i want to take the opportunity of having some spare time to keep you up to date with the last happenings...

First my new friend Héméra is leading me everywhere and it is a real pleasure to ride it, especially when it is sunny and warm like it is those days. My amount of kilometers is increasing everyday and my capacity to handle kilometers is improving.

Recently I bought my trailer. A trailer that is meant for bikes so I had to ask a friend to built an adaptation so that I could use it on my handbike. In order to gain some weight I have decided to use my wheelchair wheels (since I will carry my wheelchair in the trailer), instead of using the provided wheels.

I have also started to work with a partner on my sport suit and you will find a picture hereby attached. Later the logos of the different partners will appear on it. This suit is custom made, reinforced where there is a risk, breathable where there is contact with my seat and stretched for more confort. This suit is not waterproof, this is why I have a second suit which is waterproof. All the properties of the different garments is impressive but funny enough, yo unever have one garment that combines all the properties that you are looking for...

I also contacted the company which will provide me the appropriate freeze-dried food. The range of product they have is amazing, I just hope I won't be fed up too quickly and that I will handle eating this kind of food for 3 months.

I would like to take today's opportunity to introduce you to my new coming sponsors who recently agreed to support my adventure: Jaeger-LeCoultre, the SBM of Monte Carlo as well as Sogelym Steiner. They come in addition to those who already joined the project.

A big thank you to all of these companies and people who have trust in the project without whom I would not be able to leave...

Nice suit, isn't it ?

The preparation phase

Dear readers,

This week, I want to introduce you to my new best friend "Héméra". Why new? Because, it/ she just came into my life. Why best friend? Because we are going to hang out together for the next 4 months. Who the heck, am I talking about, you might ask ?

Well, first clue, it is not a girl... No it is my trip's best companion, the one that I am going to use everyday, whatever the weather, whatever the road, whenever within the day. I am talking about my handbike. I have been waiting for it during a whole month and it has at last arrived. The project is now becoming concrete and I can have a real training planning instead of before when I was dependent on other people lending me their handbike. I thought I would give it/ her a name in case I need to talk to someone. It will be easier to talk to Héméra than to a handbike.

Now that I have Héméra, I can also look for an adpated trailer. It might seem easy but it is actually much more difficult than everybody thinks. Indeed, the trailer is adapted to bikes and not to a handbike, meaning that I have to make some changes. But to choose the right trailer is also not simple, you have a wide range of products, ranging from monowheel towards two wheels, both offering advantages and drawbacks. Feel free to provide me with valuable advice if you have some experience with one of them.

Appart from that I have also started receiving some camping equipment. I am relieved, I will have something to sleep under. I have also chosen to take some freeze-dried food with me. 90 days of freeze-dried food will be heavy so I will make some sendings in order to spread the weight along my trip. Freeze-dried food gives some kind of flexibility, as well, managing when and where I want to eat not depending on whether I will find a restaurant or a supermarket or not. Freeze-dried food is lighter than normal food it is less bulky and you can keep it for a longer time.

Now that I am tackling logistical and concrete issues, I can feel D-Day closing in.

D-Day: D-42 

Have a look at the following video to meet Héméra:

 

If you were in a wheelchair... part 7

Dear readers,

1. Something very interesting and original happened to me one evening in Rotterdam. I was on my way home after I had accompanied a friend back to her place when it started raining. Under the rain, your hands can slip off the handrail and it becomes really tenuous to control your wheelchair. I was getting off a pavement when my wheels got stuck in the gutter and my wheelchair tipped forward. I managed to restore my balance, and before I was on my way again, a police van stopped and the two policemen inside kindly offered to drive me home. This act of kindness really touched me then and I wanted to express my gratitude.
2. What about a nice evening in a restaurant? I never say no: there’s nothing like not having to cook and discovering new flavours. But I always feel a bit embarrassed because I know that the space between tables is limited and moving in the restaurant is a real pain in the neck. The only way for me to get through with my bulky wheelchair is to ask other customers to move their chairs forward. It annoys me and I understand perfectly that people can get annoyed, so I am really thankful for most people’s sympathy and patience in these cases.
3. We haven’t really talked about pavements yet. They can be a real nightmare when they are too high, whether you have to get on or off them. It is physically impossible to get on a pavement without help if it’s too high. Getting off the same sort of pavement is a pain all the way down your spine. Most often, wheelchairs are condemned to get off the pavement when there’s a pedestrian crossing because it’s the only spots where you find accessibility facilities. That’s why a car parked on a pedestrian crossing shows the selfish and condemnable attitude of its owner.

See you next friday some new stories...

If you were in a wheelchair... part 6

Dear readers,

 

1. When I moved to Paris, I started looking for a flat. After an unfruitful demand to the city council, I decided to look for one on my own. How greatly disappointed I was when I realized that looking for a flat is far from being easy. Especially when you’re looking for a flat in a building with a lift. Moreover, you cannot always fit the wheelchair in the lift, so you sometimes need to dismantle it… I am sure you know what I’m talking about, those tiny lifts where you cannot even turn around and that barely fit two people inside. I am of course aware that these cannot be changed. This would need tremendous work, so one simply needs to look a little longer.
2. Handicapped toilets are much appreciated when they are provided for. Fortunately, you can always find them in recent buildings. The usual problem, likewise for regular toilets, is when they are in use. But it’s scandalous when they are being used by a valid person. My experience is that each time a valid person uses handicapped toilets, he or she leaves a terrible smell and an unbearable vision behind. Another reason why it is important to leave handicapped toilets free is that we do not have the same capacity to "hold in" as well as valid people… Keep this in mind…
3. I recently went to Disneyland resort Paris for the first time – it’s never too late, you might say! I could generally access all attractions (which is not always the case depending on the handicap). I was consequently really surprised when I was not granted access to one of the most recent attractions: Crush’s Toaster. In fact, it’s supposed to be accessible. Well, in theory, because it’s not the case in practice. When I got to the entrance of the then most recent attraction, I was asked to "walk" for 300m on an authentic assault course with a lot of stairs and a very large crowd making my moves difficult and even impossible. I was told that this was a security measure and a sort of security test. You can imagine that this was the end of it and that I didn’t see the attraction. It’s a real shame for a new attraction that is said to be accessible and adapted.

See you next week for some new adventures...

The wheelchair is part of my life...

Dear all,

This week, I would like to tackle the topic of wheelchairs. I often compare it to a pair of shoes. Indeed a bad pair of shoes is painful, the same holds true for a bad wheelchair. A back rest which is too high will hinder your arms when pushing your wheelchair, a back rest which is too low will be dangerous as you might risk to fall back. If your foot rest is too high then your knees will knock your chin, if on the opposite it is too low then you will loose control of your chair. Choosing your wheelchair is hard and customization is expensive, so you usually have to cope with standardization.

In France , if a €600 pair of shoes will enable you to be the king of the night, a €600 wheelchair will not lead you very far.

Furthermore, I believe that a wheelchair reflects your inner personality so you do not want your wheelchair to be ugly, you want it to be trendy and fashion like you will do with your shoes. Some carbon there, some aluminum here and some titan over there, expensive materials that are adding up easily and quickly. These materials play in favor of nice wheelchairs but they also contribute to your health and your safety. Indeed titanium hand rims might sound superfluous but it allows your hands to break without overheating. Some carbon and some aluminum decrease the weight and thus diminish your effort to get your chair going. A small reminder, arms are not originally made to play the role of legs and they cannot provide the same level of effort and do not have the same power. 

My conclusion is that a good wheelchair, a wheelchair you are proud of, will have a positive influence on your well-being but it will also cost you an eye.

Departure: D-73

If you were in a wheelchair... part 5

1. A wheelchair is worth its weight in gold and although it looks like some unbreakable object, you actually need to handle it with care. I’ve learnt this lesson unwillingly thanks to an air travel company. People who handle luggage don’t seem to make a difference between a suitcase and a wheelchair. When I was waiting for my wheelchair upon arrival, it was handed to me in a rather sad state. I had to take a cab home with my suitcase, my damaged and useless wheelchair and a tank (an uncontrollable wheelchair) that was kindly lent to me at the airport. The privilege of going home with all these goods came after a long negotiation without which I would probably still be sitting at the terminal. Here’s a message to luggage handlers, please handle our wheelchairs with care, they do cost a lot. I was never given any compensation for the cab fee as, according to the company, they have no obligation to reimburse costs brought about by mishandling of a piece of luggage (my wheelchair being in this case considered as such one piece).
2. I have a passion for paved streets. Happily today we still find a large number of paved streets in France … It unquestionably adds charm to the street, but it is an experience equal to martyrdom for anyone in a wheelchair who dares to venture on these streets. Indeed, if you’re not cautious enough, the front wheels can get stuck between paving stones, and off you go!
3. One day in Paris , I was waiting for the bus like any other regular Parisian. I was happy to see the bus arrive and prepared myself to get on, or rather jump on it I should say. This particular bus was unfortunately not adapted, but with some help, or occasionally on my own, I usually manage to embark for my journeys. But on that day, the driver had no intention to let me on and advised me to wait for the next one. The next one, what a joke… That one was not a direct bus and I would have had to change and ride through the whole city to reach my destination. In the end, I had to drag my suitcase all the way to another bus stop.

    

I heard that accessibility facilities would not be provided for in subway stations, given the amount of investment needed. The Parisian railway network company (RATP) consequently relies on the bus network.

 

If you were in a wheelchair... part 4

1. Last week's paragraph leads me to talk about handicap itself, at least as much as I know about it. There are different degrees in handicap according to which names vary. First we can distinguish tetraplegia from paraplegia. Tetraplegia concerns a four-limb paralysis, generally meaning a cervical lesion. The further down the lesion is on the spinal column, the « closer » you are to paraplegia which is a lower limbs paralysis. Tetraplegia, along with paraplegia, can be total or partial; which means that two paraplegics having the same kind of lesion can have different sensitivity and motricity. Welcome inside the human body…
2. How to manoeuvre your wheelchair is a very important thing that you are taught during your first weeks in re-education. This is when you learn to do some « wheeling », which consists in lifting up the front wheels. You can use that to show off, but more importantly it often proves useful to overcome the obstacles of the concrete jungle. To do that, you simply need to find your centre of gravity, which varies from one chair to the next… Get your figures wrong and you’ll fall backwards (potentially opening the way to a multitude of accidents) or ahead if your chair stumbles over something. When this happens, you just need to catch yourself in time and with style, so as to keep up appearances...
3. There are a lot of different types of tyres you can use for wheelchairs, but mainly you get two categories: hard ones and air tyres. With hard ones, any little bump or jump on the pavement will make your spine wince up to the neck, however they don’t get punctured and last longer. In my opinion air tyres are much more comfortable, but they have one main flaw: they get flat. When you happen to be on a street with what looks like leftovers from the celebration of a football match, be sure you’ll have to improvise some sort of rough mending. And when that happens twice in a row, you wonder whether it wouldn’t have been better for you just to stay at home.

If you were in a wheelchair... part 3

Dear readers,

Let's go further with those short stories.

1. Nowadays, a lot of people use the term “handicapped”, or “crippled” as a “gentle” insult. “Cooking cripple”, “driving cripple”, “love cripple” or even just “cripple”. It appears that we handicapped people are constantly at the centre of debates… If this is the case the number of handicapped people will be rising by the minute. However something that I’ve never heard is “leg cripple”.  Probably out of respect :-)  
2. It’s been a few years now that people in wheelchairs have had, like any valid person, the possibility to go to the cinema. The rather limited choice of seat remains a problem. You either have to be in the front row which will guarantee you a free of charge stiff neck, especially if you stay in your wheelchair; or, depending on how the room is, you’ll have to go to the dunces’ row, at the other end of the theatre. You simply can’t sit wherever you want, just like any other person.
3. It’s one thing to be sitting all day in your wheelchair, and as soon as you get the chance and depending on the level of your handicap, you’ll want to jump out of it. Be it on a couch, in a nice seat at the cinema, a nice and comfy armchair or on some soft and green grass, any excuse will do (well, that’s my opinion).

If you were in a wheelchair... part 2

Dear readers,

This week, I would like to share with you some comical and some less comical aspects of a life in a wheelchair. Some of these little things make me laugh and I hope it will be the same for you.

1. As you go down the street, you’re constantly inspecting the pavement, just like any valid person, in order to avoid the dejections of man’s best friend. In a wheelchair, you don’t walk, you roll and your feet won’t be the ones to get all sticky with this stinky substance, your hands will.
2. When you find yourself queuing in a supermarket, people sometimes offer you to get in front of them, which saves me time, although I’m perfectly able to wait in line like most people. But it’s hard to forgive people who use priority checkouts because they are less crowded, especially when they do not pay any attention to you. In certain shops, they are often the only ones you can go through with a wheelchair.
3. Being in a wheelchair can be a fantastic and strategic weapon if you go to a bar or to a party. Actually, girls regularly want to sit on my lap, which triggers the curiosity of some and the respect of others. Naturally I’m not complaining, just simply sympathizing with the valid who don’t have this – call it what you want – chance or charm. A wheelchair can also bring some good about…

See you next friday for some new adventures...

The word handicapped

Do you know where the word 'handicap" comes from ? 

It comes from the English expression "hand in cap" which was a game where one would compete for personal objects whose price will be determined by a referee, the waging will then be put in a cap. Through years "hand in cap" was applied to sport and was transformed to "handicap". This new word reflects the will to give an equal chance to competitors by imposing added difficulties to the best competitor.

The word handicapped has, depending on the countries, different meanings. This difference in meanings reflects the fact that people perceive and integrate handicapped people in their own way depending on their country of origin. Northern Europe countries for instance are known to better accept handicapped within their society. Will my project confirm this hypothesis?

According to the French law of February 2005, is considered a handicap everything that limits you in terms of activity or that restrains your participation to life within society because of a substantial, lasting or definitive alteration of one or more of your functions. These functions can be physical, sensory, mental….

Being in a wheelchair, a handicap? Steps are a hassle, any doorstep makes it difficult, social integration is modified and chances to get a job are reduced. To think about the difficulties met by handicapped is already trying to reduce his handicap.

Today almost 10% of the French population says to live with a handicap, more than 40 millions within Europe . This figure is increasing because of the increase of life expectancy.

You are not handicapped today, enjoy, it could happen to you when you become older, think about it! Knowing what being handicapped means, I want to try to reduce the chances for your to know this situation, I will tell you how soon.

Departure: D-93